The MCRAE FAMILY....
My co-workers 5 month old little boy is in serious need of some prayers. Little Smith McRae was born back in December, just before Christmas. Things were going as normal with their newborn for a few weeks, or so they thought, until the parents (Blayne and Adriane) noticed that Smith's yellowish coloring wasn't really dissipating as it should postpartum. They took little Smith to the doctor when he was about 6-8 weeks old and that's when the McRae family began to learn A LOT more about the medical world than they probably ever would have imagined.
It turns out that Smith has a rare liver disease called biliary atresia. To make a long story somewhat shorter, the family is waiting for a liver transplant for their little one. Smith is pretty high on the transplant list from what I understand, but the uncertainty of when a liver that matches will come available before his condition gets substantially worse is a little unsettling.
They have only been battling this since they found out in February, but since then Smith has already been through 5 or 6 surgeries. You can learn more about this family through this site if you're interested. http://www.caringbridge.org/visit/smithmcrae
The McRae's are pretty much in the hospital with him at either Texas Children's, Our Lady of the Lake, or Woman's Hospital at least once a week. The trend seems to be that he's admitted to the hospital for one complication or another and will have to stay anywhere from 3-10 days per visit. Then, he usually comes home for a week and all is well UNTIL something else comes up.
Anyway, I have grown to love this family so much and wish I could do something more to help. My fervent prayers are heard, I know, by a loving Heavenly Father, but until there are solutions for Smith's conditions I will always want to do more. Hopefully, the transplant will be the answer! I'm just hoping that it happens SOONER rather than LATER. Until then, I'm going to keep praying that this family gets a reprieve.
BY THE WAY, Blayne and Adriane also have an almost 2-year old son, Raz, who is not 100% either. Raz has a kidney condition that they learned about in utero, but have been able to get by without too many complications to date. They have to make a couple of yearly trips to N.O. to Children's Hospital to have scans and what not for Raz to make sure his condition hasn't worsened.
SERIOUSLY friends and family, please remember this family in your prayers tonight if you're reading this post. Little Smith went back in the hospital here in Baton Rouge this morning, but will more than likely be flown to Texas Children's later today for further observation.
Love you all!
1 comment:
OK! Love you!
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